Category Archives: Autism

Loving with Autism: Driving to School

Loving with Autism: Driving to School

Today as I watched Thomas walk into school… after he had driven there… and I have to pinch myself… he is driving… well I had a moment of reflection…

He is doing so great and he is going to be ok… for all of the kicked in walls, the swearing, the spitting, the broken windows and the grief that we felt we were drowning in… even though there was all of that he is going to be just fine!

He is working at the Coffee Club one day a week, he is never late for work or for school… he never wants to ‘disappoint’ his teachers or anybody else… he adds a unique sparkle to his service at the cafe as he presents the meals with enthusiastic and unique gestures as he says ‘enjoy your meals’!! It is hard to inspire people in the normal spectrum to add such personality and uniqueness to there service!

He does his own washing and unpacks the dishwasher without being asked, just because it is obvious it needs doing…

He loves the people he really loves with a depth of feeling that can truly be felt in the hugs he gives as he wraps his big arms around you…

Yep, I want you to know that if you are in the midst of the worst of times to hang in there because it will get better… and you won’t always see how it could possibly get better no matter how hard you look… so sometimes you just have to let go, do your best and trust… and then one day you wake up and you just won’t believe how much better it got… and you will see and know that it was all worth it… and you breathe out.

Autism Awareness Month

Autism Awareness Month

In this month that is Autism Awareness month I share a poem that captures some of the journey that is Autism. Mum, what will I eat, why are the cornflakes that colour, I don’t like how you looked at me and do you know the name of that fella, Percy is green Thomas the TankContinue Reading

Loving with Autism: Tom is 17!

Loving with Autism: Tom is 17!

In true Thomas style he went and bought his cake, made, decorated it and bought his candles for it… he bought his birthday balloons too and we celebrated with him. If you had told me when Tom was 2 or 3 or 9 that Thomas would be achieving what he is today at 17 IContinue Reading

Loving with Autism Update: A Letter

Loving with Autism Update: A Letter

When we were in the midst of our grief and devastation and Autism was so loud and Thomas was smashing walls and windows and swearing and I was doing a lot of howling and a little swearing myself… well we weren’t easy to live beside… I felt the judgements of neighbours and at this pointContinue Reading

Loving with Autism Update: Senior Badge

Loving with Autism Update: Senior Badge

On Friday Thomas received his ‘Senior’ badge as he begins this final year at school. Leaders were presented with their Leadership Badges too… and as we celebrated them and they talked about the role of Leadership and what it looks like I couldn’t help but reflect… Although Thomas never received a leadership role, (which isContinue Reading

Loving with Autism Update: Coffee Club

Loving with Autism Update: Coffee Club

Loving with Autism Update: Thomas said to me this morning… ‘Well, they have told me that I won’t need my support worker at Coffee Club for much longer!’ I say, ‘Thomas that is great news, you are doing such a good job’ He says, ‘Yep, so I guess I won’t be Autistic any more!’ AndContinue Reading

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